90+ Resources for 18q- Deletion Parents and Carers
Chromosome 18q- is complex. It is not a one size fits all condition and so it is massively important to gain the most varied, up to date and relevant information to best help our children. Below is a MEGA list of resources for 18q- parents. Ranging from eye impairment help, hearing and communication guidance or physiotherapy sign posting.
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Early Development Help |
Portage |
Children’s Sure Start Centres |
Money Matters |
DLA |
Turn2Us |
Family Fund |
Education: |
Local Offer |
Teaching Resources and Help: |
TTSGroup |
Twinkl |
Tes |
Special Needs Jungle |
Teaching Ideas |
Short Breaks for your child or the family |
Barnardos |
Scope |
Support/Advice
Mobility service
Queen Elizabeth Foundation
Motability
Support for parents and carers:
Small Steps
Special Needs Jungle
Sensory Impairment
http://www.sensoryintegration.org.uk/
https://www.sensorysmarts.com/interviews_and_articles.html
http://www.spdaustralia.com.au/the-tactile-system/
http://vestibular.org/understanding-vestibular-disorder/human-balance-system
http://www.lanc.org.uk/neurofeedback/
http://www.lanc.org.uk/neurofeedback/
http://www.sensory-processing-disorder.com/fine-motor-skills-activities-for-children.html
http://www.thesensoryspectrum.com/recognize-tactile-defensiveness-children/
Lemonlimeadventures.com
http://mamaot.com/2014/07/18/30-ot-life-hacks-tricks-to-make-life-easier-for-you-and-your-child/
Hearing Support
https://www.actiononhearingloss.org.uk
Physiotherapy Support Resource
http://www.csp.org.uk/your-health/find-physio/find-physiotherapist
http://www.csp.org.uk/your-health/find-physio/physio2u
http://www.physiofirst.org.uk/
http://www.therapy-directory.org.uk
http://www.skillsforaction.com/joint-hypermobility
http://www.tumbletots.com/programmes.php?ID=3
http://gymboree-uk.com/find-class/
http://dyspraxiafoundation.org.uk
Speech and language Support Resource
http://www.beyondautism.org.uk
http://www.autism.org.uk/about/what-is/asd.aspx
http://www.talkingpoint.org.uk
http://dyspraxiafoundation.org.uk
http://www.sentencetrouble.info
http://www.literacytrust.org.uk
http://www.thecommunicationtrust.org.uk
http://www.hanen.org/About-Us/What-We-Do/Early-Childhood-Language-Delays.aspx
http://www.childrensspeechtherapyni.com/media/uploads/Communicati0n_Cookbook.pdf
://www.childrensspeechtherapyni.com/media/uploads/small_talk_final.pdfhttp://www.speechteach.co.uk/p_general/downloads.htm
http://www.findavoice.org.uk/Home
https://www.widgit.com/about-symbols/index.htm
Super Star Speech – Free Sound Production Tips
http://www.superstarspeech.com/speech-sound-production-tips-k-g.html
Sookie and Finn
PECS – Picture Exchange Communication System
Attention Resource
Understood ** Live twitter chat and coaching for parents available
Eye Support Resource
Cleft and Lip Support
Cleft Lip and Palette Association
Autism
Ambitious About Autism
Behaviour Support
Okay not quite 90! I miscounted but this will be updated soon so it will be pushing 90 soon!
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