90+ Resources for 18q- Deletion Parents and Carers

Chromosome 18q- is complex. It is not a one size fits all condition and so it is massively important to gain the most varied, up to date and relevant information to best help our children. Below is a MEGA list of resources for 18q- parents. Ranging from eye impairment help, hearing and communication guidance or physiotherapy sign posting.

Pin it.  Bookmark it.  Save it.

 

 

Early Development Help

Portage

Children’s Sure Start Centres

Money Matters

DLA

Turn2Us

Family Fund

Education:

Local Offer

Teaching Resources and Help:

TTSGroup

Twinkl

Tes

Special Needs Jungle

Teaching Ideas

Short Breaks for your child or the family

Barnardos

Scope

Support/Advice

Contact a Family

Cerebra

Mobility service

Queen Elizabeth Foundation

Motability 

StairLift Grants

Support for parents and carers:

Carers UK
Carers Trust

Small Steps
Special Needs Jungle

Children’s Trust

Sensory Impairment

http://www.sensoryintegration.org.uk/

https://www.sense.org.uk

https://www.sensorysmarts.com/interviews_and_articles.html

https://www.spdstar.org

http://www.spdaustralia.com.au/the-tactile-system/

http://vestibular.org/understanding-vestibular-disorder/human-balance-system

http://www.lanc.org.uk/neurofeedback/ 

http://www.lanc.org.uk/neurofeedback/ 

http://www.sensory-processing-disorder.com/fine-motor-skills-activities-for-children.html

http://www.thesensoryspectrum.com/recognize-tactile-defensiveness-children/

http://pathways.org/

Lemonlimeadventures.com
http://mamaot.com/2014/07/18/30-ot-life-hacks-tricks-to-make-life-easier-for-you-and-your-child/

Hearing Support

https://www.actiononhearingloss.org.uk

http://www.ndcs.org.uk

Physiotherapy Support Resource

http://www.csp.org.uk/your-health/find-physio/find-physiotherapist

http://www.csp.org.uk/your-health/find-physio/physio2u

http://www.physiofirst.org.uk/

http://www.therapy-directory.org.uk

http://www.skillsforaction.com/joint-hypermobility

www.Smallsteps.co.uk

http://www.tumbletots.com/programmes.php?ID=3

http://gymboree-uk.com/find-class/

http://dyspraxiafoundation.org.uk

Speech and language Support Resource

https://www.makaton.org

http://www.beyondautism.org.uk

http://www.autism.org.uk/about/what-is/asd.aspx

https://www.rcslt.org

http://www.ican.org.uk

http://www.afasic.org.uk

http://www.talkingpoint.org.uk

http://dyspraxiafoundation.org.uk

http://www.sentencetrouble.info

http://www.literacytrust.org.uk

https://www.kids.org.uk

https://www.avuk.org

http://www.candleaac.com

http://www.thecommunicationtrust.org.uk

http://www.signalong.org.uk

http://www.elklan.co.uk

http://www.talkingmats.com

http://www.hanen.org/About-Us/What-We-Do/Early-Childhood-Language-Delays.aspx

mommyspeechtherapy.com

http://www.childrensspeechtherapyni.com/media/uploads/Communicati0n_Cookbook.pdf
://www.childrensspeechtherapyni.com/media/uploads/small_talk_final.pdfhttp://www.speechteach.co.uk/p_general/downloads.htm

http://www.findavoice.org.uk/Home

http://www.1voice.info

https://www.widgit.com/about-symbols/index.htm

http://acecentre.org.uk

http://www.talkingmats.com

18 Free Speech Boosting Apps

Super Star Speech – Free Sound Production Tips

http://www.superstarspeech.com/speech-sound-production-tips-k-g.html

Sookie and Finn

http://www.sookieandfinn.co.uk/pages/helpyourchildtalkhttp://www.sookieandfinn.co.uk/pages/helping-an-autistic-child-talk

PECS – Picture  Exchange Communication System

http://www.pecs.com/

Attention Resource

Understood ** Live twitter chat and coaching for parents available 

ADHD Services

Eye Support Resource

Nystagmus Network

Vision Matters

http://www.victa.org.uk

Cleft and Lip Support

Cleft Lip and Palette Association

Autism

Ambitious About Autism 

Behaviour Support

Challenging Behaviour

Young Minds

Mencap

Scope

Okay not quite 90! I miscounted but this will be updated soon so it will be pushing 90 soon! 

 

Pin it.  Bookmark it.  Save it.