Huge Chromosome 18q Resource for Parents and Carers

90+ Resources for 18q- Deletion Parents and Carers

Chromosome 18q- is complex. It is not a one size fits all condition and so it is massively important to gain the most varied, up to date and relevant information to best help our children. Below is a MEGA list of resources for 18q- parents. Ranging from eye impairment help, hearing and communication guidance or physiotherapy sign posting.

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90 free special needs resources, speech and language, occupational therapy, challenging behaviour , autism
90+ Free resources for parents and carers Chromosome 18q-

 

 

Early Development Help
Portage
Children’s Sure Start Centres
Money Matters
DLA
Turn2Us
Family Fund
Education:
Local Offer
Teaching Resources and Help:
TTSGroup
Twinkl
Tes
Special Needs Jungle
Teaching Ideas
Short Breaks for your child or the family
Barnardos
Scope

Support/Advice

Contact a Family

Cerebra

Mobility service

Queen Elizabeth Foundation

Motability 

Support for parents and carers:

Carers UK
Carers Trust

Small Steps
Special Needs Jungle

Children’s Trust

Sensory Impairment

http://www.sensoryintegration.org.uk/

https://www.sense.org.uk

https://www.sensorysmarts.com/interviews_and_articles.html

https://www.spdstar.org

http://www.spdaustralia.com.au/the-tactile-system/

http://vestibular.org/understanding-vestibular-disorder/human-balance-system

http://www.lanc.org.uk/neurofeedback/ 

http://www.sumanasinc.com/webcontent/animations/content/vestibular.html

http://www.lanc.org.uk/neurofeedback/ 

http://www.sensory-processing-disorder.com/fine-motor-skills-activities-for-children.html

http://www.thesensoryspectrum.com/recognize-tactile-defensiveness-children/

http://pathways.org/

Lemonlimeadventures.com
http://mamaot.com/2014/07/18/30-ot-life-hacks-tricks-to-make-life-easier-for-you-and-your-child/

Hearing Support

https://www.actiononhearingloss.org.uk

http://www.ndcs.org.uk

Physiotherapy Support Resource

http://www.csp.org.uk/your-health/find-physio/find-physiotherapist

http://www.csp.org.uk/your-health/find-physio/physio2u

http://www.physiofirst.org.uk/

http://www.therapy-directory.org.uk

http://www.skillsforaction.com/joint-hypermobility

www.Smallsteps.co.uk

http://www.tumbletots.com/programmes.php?ID=3

http://gymboree-uk.com/find-class/

http://dyspraxiafoundation.org.uk

Speech and language Support Resource

https://www.makaton.org

http://www.beyondautism.org.uk

http://www.autism.org.uk/about/what-is/asd.aspx

https://www.rcslt.org

http://www.ican.org.uk

http://www.afasic.org.uk

http://www.talkingpoint.org.uk

http://dyspraxiafoundation.org.uk

http://www.sentencetrouble.info

http://www.literacytrust.org.uk

https://www.kids.org.uk

https://www.avuk.org

http://www.candleaac.com

http://www.thecommunicationtrust.org.uk

http://www.signalong.org.uk

http://www.elklan.co.uk

http://www.talkingmats.com

http://www.hanen.org/About-Us/What-We-Do/Early-Childhood-Language-Delays.aspx

mommyspeechtherapy.com

http://www.childrensspeechtherapyni.com/media/uploads/Communicati0n_Cookbook.pdf
://www.childrensspeechtherapyni.com/media/uploads/small_talk_final.pdfhttp://www.speechteach.co.uk/p_general/downloads.htm

http://www.findavoice.org.uk/Home

http://www.1voice.info

https://www.widgit.com/about-symbols/index.htm

http://acecentre.org.uk

http://www.talkingmats.com

18 Free Speech Boosting Apps

Super Star Speech – Free Sound Production Tips

http://www.superstarspeech.com/speech-sound-production-tips-k-g.html

Sookie and Finn

http://www.sookieandfinn.co.uk/pages/helpyourchildtalkhttp://www.sookieandfinn.co.uk/pages/helping-an-autistic-child-talk

PECS – Picture  Exchange Communication System

http://www.pecs.com/

Attention Resource

Understood ** Live twitter chat and coaching for parents available 

ADHD Services

Eye Support Resource

Nystagmus Network

Vision Matters

http://www.victa.org.uk

Cleft and Lip Support

Cleft Lip and Palette Association

Autism

Ambitious About Autism 

Behaviour Support

Challenging Behaviour

Young Minds

Mencap

Scope

Okay not quite 90! I miscounted but this will be updated soon so it will be pushing 90 soon! 

 

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