Chromosome 18q, Nystagmus and Global Developmental delay resource for parents and carers
My daughter is 5 and I want her to get a job! It is Learning Disability Week (19th -25th June) and this year the focus is on ‘Employment’. Now at 5 years old, I think my daughter might be a little too young to get a job. However, I think if there was some kind…
EPISODE 3 Listen Here Becoming a special needs parent is often a path that was never planned for. You are thrown into a situation where you need to learn information, skills and awareness FAST. You become a strategist, researcher, and changemaker – for your child. You now have someone depending on you to shape…
…So I nearly cried in a children’s playground today… Let me fill you in… I have a love-hate relationship for school holidays, I love spending more time with G, but hate that immense pressure I feel to do stuff to keep her busy all the time. Today I decided to take a trip to our…
What is it like raising a child with Chromosome 18q-? After getting your child’s 18q- diagnosis, you might be thinking “What is my life going to be like as a special needs parent?” Will everything change? Can I even cope? In this episode, I give you an insight into my world as I adjust on the…
