Chromosome 18q, Nystagmus and Global Developmental delay resource for parents and carers
EPISODE 3 Listen Here Becoming a special needs parent is often a path that was never planned for. You are thrown into a situation where you need to learn information, skills and awareness FAST. You become a strategist, researcher, and changemaker – for your child. You now have someone depending on you to shape…
…So I nearly cried in a children’s playground today… Let me fill you in… I have a love-hate relationship for school holidays, I love spending more time with G, but hate that immense pressure I feel to do stuff to keep her busy all the time. Today I decided to take a trip to our…
What is it like raising a child with Chromosome 18q-? After getting your child’s 18q- diagnosis, you might be thinking “What is my life going to be like as a special needs parent?” Will everything change? Can I even cope? In this episode, I give you an insight into my world as I adjust on the…
19 Tips for teachers: Nystagmus and Chromosome 18q- When you are teaching a child with a Chromosome 18q- deletion, they may have more than one challenging need that needs to be met. This can make it increasingly challenging for a teacher – but not impossible. If your student has Nystagmus and a learning disability a holistic…
