Chromosome 18q, Nystagmus and Global Developmental delay resource for parents and carers
One of the most daunting prospects after getting Gs diagnosis was that she may have to go to a special school. I can recall my determination that she would go to a ‘normal’ school. She would beat the odds and her diagnosis and be a ‘normal’ child. I furiously chased physiotherapy appointments and became obsessed…
Originally Posted on Firefly Community. “Why won’t he say sorry?”! She said as she clung to me and wept… This was my daughter in the middle of a hospital in the waiting room. What had happened…well, let me take you a few steps back… My daughter has multiple needs, she has a hearing impairment,…
To mark Carers Week (June 12-18th) this year I wanted to reach out to all the people who are currently caring for a loved one. This was originally featured on Firefly Community Dear Carers, I have a confession to make – I am extremely lonely Being a carer is an all-encompassing role. It takes it…
Up to 40% of those with a learning disability suffer from Mental Health problems. So why are we not talking more about Mental Health and learning disabilities? Pin it. Bookmark it. Save it. Mental health is a lot less of a taboo now, with many well-known personalities such as Demi Lavato, Ryan Reynolds and Katie…
