Chromosome 18q, Nystagmus and Global Developmental delay resource for parents and carers
My ‘ah ha!‘ Lockdown homeschooling moments (This post is an adapted version of the original post on Nystagmus Network which you can read here) Lockdown is ‘over’ and G has resumed going back to school- for now. I learnt a lot during the first, second and third lockdown and I would have loved to write…
Have you you ever found yourself listening to a Youtube video and the person speaking, speaks about something that feels startlingly like your own life? They express so eloquently a pain or struggle they have experienced but it feels as if they are talking about You? In those moments it can feel so surreal to…
“God only gives you what YOU can handle” I used to hate seeing this Instagram/Facebook “motivational” saying. It made me think God was a spiteful God and one that was trying to bring me to my knees – as I wasn’t handling this special needs journey at all. I used to be resentful at times…
Sleep Glorious Sleep Before the summer holidays she slept mostly through the night. As long as her Reflux was in check she was ok. Post holiday she has regressed to the days of a baby. She cries if I leave the room. Wakes every couple of hours. I am beyond exhausted. Not to mention the…
